Ergobaby Community

Things I Wish I Knew When I Learned My Baby Had Down Syndrome 

This post was guest written by Rachael Lampa.

“99% risk of having Down Syndrome”. That was what the report said. I’m pretty sure there were also exclamation marks at the top and I’m pretty sure they were also in red. And the word, RISK?! Yikes. I wish they would use words more like: 99% OPPORTUNITY for having Down Syndrome! No wonder the first feelings are worry and fear! 

Sure, this is not what you expected. This birth and this future might not be what you had in mind. And please, moms and dads, take the time to feel that- all of it. The grief, the pain, the panic, the questions. But can I just say, as I am 2 years in, the good comes! And it comes fast! And sometimes it's coupled with struggle, but the good is bigger! 

Words matter. Tone matters. The voices of the Down Syndrome Community matter and that is why I want to start by thanking Ergobaby for asking the question- what are the “Things I Wish I Knew When I Learned